Billygean.co.uk

Compulsive Reading

Also, spider sightings today: 5!!

huff – you know what, I am tired of bad news. What strikes me as unique from these past few months is not just the lying down all day, but the number of times I’ve given myself til midnight, til the next day, next week, to get over something.

Here’s todays:

Dear Billygean

I know that you think I have died or something like that! but I heard back from the Registry last week that we cannot agree to you doing the exams at home. I will ring you tomorrow to see where we go from there.

Head of Law College

Hum, yes, I did rather think he had died – or rather, that would be the only suitable excuse – since he took three months to reply to an email and I found out on Friday that I haven’t deferred the year yet because he had not filed the paperwork.

I guess that’s why he’s not a lawyer anymore.

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Afterwards, I sent 7 hysterically celebrating texts that I’d been to the supermarket!

“I’ll make you a Chinese,” MindReader had said in response to my food cravings.

I had found him a recipe, given him a list.

“Actually, I’ll come,” I had said casually. “You won’t know if some of the stuff is gluten free.”

I did not reveal my private hopes.

The car journey took longer than expected, and the supermarket was crowded and full of hazards; grapefruits rolling out in front of me, toddlers wandering around.

My eyes seemed wider than myself, as I felt the cool breeze from the fridges, smelt fresh fish and herbs and spices.

We bought all 19 ingredients and I paid at the till – at the till! – with my cash card, barely used over the last 6 months.

6 months, I think as I sit in the car as MindReader puts the shopping in the boot. The sounds of The Stereophonics wash over me and I realise that – a mirror into the future – whilst I will never be glad I got ill, I would not be able to imagine my life without post viral fatigue, even when it is over. Never again, I think, will going to the shops be simply, shopping, a chore.

I lean back in the chair, look at the clouds, and allow myself a few tears. It is nearly over.

1 Comment »

Where you see I am not just painfully honest on my blog but also to my boyfriend!

MindReader and I are lying on our backs outside under the stars. Well, I am sort of on his shoulder, because the ground is cold.

“I’m sorry I’m so – urgh – needy,” I say, idly watching a blinking star peeking out from behind my house.

“It’s fine,” he says, relaxed as ever. “It’s more than understandable in your situation.”

“I know,” I say with a wave of my hand; I have heard more than enough about my situation. “It’s just rubbish, my mood just sinks when you leave, and picks up again when you’re back,” I say, with the creeping realisation that, sickness aside, this might be called being in love.

“I don’t really know what to do,” I say, propping myself up on my elbows to look at his eyes, which look almost navy blue.

“Well,” he says softly, “do that typing for Ex Boss, earn some money and a sense of – purpose. Do things you love. And keep getting better.”

I lean back on him and watch the stars.

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AND the caffeine headache has gone!

Gosh, here is a big public thank you to GlutenFreeComputerGeek who has just sent me a huge parcel containing:

Chocolate tea
2 x gluten free dairy free chocolate buttons
Dairy free FUDGE, which I hadn’t even considered how much I would miss fudge and now I do not need to!
Dairy free (etc) brownie
Digestive biscuits!
Chocolate Rice Crackle bar

Hurrah for junk food!!!

1 Comment »

On boyfriends

I curl up on the sofa with a hot mug of decaf soya tea.

Well, it was almost perfect.

“I think everyone would benefit from seeing a psychologist,” Lucy is saying. Lucy is my best friend in the whole world, and she dates a lovely boy called Ben. I don’t usually blog about her because our conversations are too neurotic. Or about tampons.

“Me too,” I say, “like admin for the thoughts.”

“Although,” she says, “the Bens and MindReaders of the world probably don’t need it.”

“No. MindReader would be utterly baffled by therapy.”

“So would Ben.”

“What would they do?”

“I think MindReader would say he was fine and discuss dinner or football.”

“I think Ben would humour them. And smirk.”

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Reasons to believe my gluten-dairy-free almond macaroons are going to be disgusting:

1. The instructions said “put an egg white into a bowl and whisk until it forms frothy peaks but is not stiff.” So, I put an egg white into a bowl, removed the shell, and whisked it. For half an hour. Egg white remained yellow piss-like liquid and did not become frothy or peaky.

2. Continued anyway – because there is no alternative path for when you’ve messed it up. is there? – instructions told me to beat the ground rice, ground almonds etc into the peaky frothy egg white. There was 150g of said ground almonds and rice. This OVERCAME the egg white resulting in, basically, ground almonds and rice. In a bowl.

3. Pushed on regardless. Horrible Lady who wrote the book said to “roll the mixture into balls and place on a baking tray.” My mixture was not rollable. I spooned flour-like mixture onto a GLUTEN FREE RICE SHEET and exited the room.

I did stand up for 20 minutes though :)

3 Comments »

A lot of news

Hi!

Sorry this is going to be boring. But if I do not update like this, my blogs will have no context, and you’ll be all like, why is she drinking rice milk?!

1. MadFather has been made redundant, and I have been refused benefits THREE TIMES because apparently there are loopholes even when you are broke and ill, so, ExBoss has given me a job! That’s right! A couple of hours a day, or whatever I can manage I think (hi, ExBoss!) lying down with Beloved Laptop, typing, then will send typing back to ExBoss in return for money. And then can buy cardigans! And bath products!

2. Finally got the blood test results out of Purple Eyes. I had to quote a statute! They were 1.9 and 1.95 which means nothing to you or I, except that I thought 1 point anything was a pretty negative test until I realised that anything above 4 is considered positive. So, as the doctor said quite casually, my body is producing antibodies to something I’m eating.

So I spent a while talking to my very extended family, the people who have all had post viral fatigue and they agreed that gluten, dairy and caffeine were all culprits in keeping them ill. So, because I want to be better quickly (and we shall worry about reintroduction at a very much later date), they have all gone out of my diet.

And OH MY GOD. The caffeine headache. Sod gluten, I don’t even like bread (although it does make snacking hard, would you believe every bag of crisps in Sainsbury’s contains either gluten or lactose?! Or chocolate – even dark chocolate which is rubbish anyway. So, am resorting to snacking on so much fruit that I am almost pooping every other day :o ) but caffeine I dearly miss. My poncy decaf soya coffees do not cut it. Indeed just as MindReader climbed into bed next to me, instead of carressing him like the loving housebound girlfriend that I am, I bent forward on all fours, put my head into his lap and pulled at my hair until he got me a painkiller. One of the few that doesn’t contain lactose.

So. Yes. Caffeine drama. If you recall I did not succeed giving up caffeine before. But there’s a little more at stake this time.

3. Having drama with the college of law where I used to study. The term was split September – February and March to June. Please bear with me. I can practically hear a thousand browser windows closing. So: I was supposed to sit the exams at the end of February. Obviously did not, choosing to have coffee and crying with the tea ladies instead. Now I have to do those exams this August. Obviously Body does not want to, because Body is addicted to Neighbours and sleeping in. However I have since found out if I don’t sit them, because of – joy of joys – some new legislation coming into force and changing the whole course, I will have to repeat the whole year.

Which costs £9,000.

So, you’re up to speed.

10 Comments »

Thanking

Well.

Since I published my email the other day I have had 26 reader emails. Life stories from their own experiences of M.E/post viral fatigue to questions about what my politcal views are to advice on how to not get down whilst am in bed on the sofa.

It is honestly an honour. So: thank you.

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How to: placate me

MadFather and I are in a bookshop, just before closing so the aisles are cool and empty.

This is, of course, huge progress given my propensity to browse in book stores so do not tell The Glands.

MadFather silently points to a yellow book. I shriek and pick it up.

“Living with M.E or post viral fatigue,” I read. “Living with?”

MadFather looks as if he thinks I am about to have a I’m going to have M.E for ten years full blown hissy fit.

“Living with M.E?” I say again, sitting down on the bottom shelf.

MadFather sits next to me and opens the book randomly.

“How to: shopping,” he reads. “You may be able to organise a carer to take you shopping… blah blah blah… organise a wheelchair.”

I am appalled, and stand, about to stalk off into the Tragic Life Stories section.

“I don’t know if you’ve noticed,” MadFather says, “that, even if you need a lie down afterwards, you are shopping.”

And suddenly things seem brighter.

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Announcement/begging for email

Hi!

I have added my email at the top there (F5 and ctrl if you can’t see it) and have added a LAMB BAA-ING sound to my outlook for when I get email.

So, if you ever want to talk privately, you can, with added baa-ing sounds!

BG

6 Comments »

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